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y Blain-Moraes, Stefanie
     

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ARTICLES DE PERIODIQUES

Resonance : a brain-computer interface assemblage of EEG, sound, and therapeutic clowns for the detection of consciousness

Blain-Moraes, Stefanie ; Incio Serra, Natalia ; Maschke, Charlotte ; Webber, Jamie ; Holland, Melissa ; Tembeck, Tamar ; Grond, Florian ; Schlesinger, Joseph ; Bernard, Francis ; Vinit, Florence
2024

A growing number of individuals live with medical conditions and injuries that render them minimally communicative. Assessing their level of consciousness and awareness is a major challenge that has profound implications for care decisions and their relationships. Resonance: a novel brain-computer interface assemblage, is designed to detect and augment expressions of consciousness in minimally communicative individuals. Resonance consists of (1) high-density EEG features that vary with states of consciousness; (2) sound; and (3) therapeutic clowns. Seven EEG features of consciousness are calculated in real time and mapped to sonic output. Therapeutic clowns use multisensory improvisational play to interact with these sonified brain features to create interpersonal connections with minimally communicative individuals. Resonance has the potential to reveal real-time variations in an individual’s level of consciousness, which may create an entirely new form of interpersonal interaction with minimally communicative persons.
A growing number of individuals live with medical conditions and injuries that render them minimally communicative. Assessing their level of consciousness and awareness is a major challenge that has profound implications for care decisions and their relationships. Resonance: a novel brain-computer interface assemblage, is designed to detect and augment expressions of consciousness in minimally communicative individuals. Resonance consists of (1) ...

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ARTICLES DE PERIODIQUES

Piece of mind : presenting the lived experience and scientific research of parkinson’s disease through an artistic lens

Kuhlmann Naila ; Robert, Jérémie ; Aliki, Thomas ; Blain-Moraes, Stefanie
LEONARDO, vol. 57, nº 1, p. 13–17, 2024

Many of the important research advances in understanding and treating Parkinson’s disease never leave the academic sphere, as communication barriers limit accessibility for, and engagement with, broader audiences. To increase meaningful dialogue between academic researchers and community stakeholders, Piece of Mind: Parkinson’s brought together neuroscientists, people with Parkinson’s disease (PD), and artists to co-create a knowledge translation performance based on scientific research and lived experience. The filmed, feature-length performance engages the viewer emotionally and intellectually using circus, dance, music, poetry, and patient testimonials. We provide an overview of our participatory process and a scene-by-scene description of the performance.
Many of the important research advances in understanding and treating Parkinson’s disease never leave the academic sphere, as communication barriers limit accessibility for, and engagement with, broader audiences. To increase meaningful dialogue between academic researchers and community stakeholders, Piece of Mind: Parkinson’s brought together neuroscientists, people with Parkinson’s disease (PD), and artists to co-create a knowledge t...

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ARTICLES DE PERIODIQUES

“I made you a small room in my heart”: how therapeutic clowns meet the needs of older adults in nursing homes

Plez, Ludivine ; Holland, Melissa ; Kulasegarampillai, Priyanka ; Sieu, Thun-Carl ; Blain-Moraes, Stefanie
National Library of Medecine, INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING, 2023, VOL. 18, 10 p., july 2023

Therapeutic clowns are increasingly common in nursing homes, where residents often encounter factors that can undermine their quality of life and dignity. We aimed to understand the strategies of successful therapeutic clowning with a diverse older adult population, and the unique contributions of elder-clowning to the nursing home experience. Using an interpretivist descriptive methodology, twenty-three (n=23) experienced therapeutic clowns from eight countries were interviewed to understand the needs of nursing home residents met by elder-clowns, and strategies and techniques the clowns use to address them. Participants identified five major needs: to escape routine; for reassurance of worth; for meaningful, personalized social interaction unrestricted by communication barriers; to have culturally meaningful opportunities for reminiscence; and to have a space where residents could be unapologetically themselves. The artistic and emotional strategies used by the therapeutic clowns to address these needs illustrate how creativity, imagination and relational presence can provide nursing home residents with a sense of being known and belonging. Elder-clowns also positively affect the nursing home staff and enrich the interpersonal interactions in the residence. Through their focus on the social and emotional needs of residents, elder-clowns can play an important and distinct role in creating an optimal nursing home experience.
Therapeutic clowns are increasingly common in nursing homes, where residents often encounter factors that can undermine their quality of life and dignity. We aimed to understand the strategies of successful therapeutic clowning with a diverse older adult population, and the unique contributions of elder-clowning to the nursing home experience. Using an interpretivist descriptive methodology, twenty-three (n=23) experienced therapeutic clowns ...

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ARTICLES DE PERIODIQUES

“We are still doing some magic”: exploring the effectiveness of online therapeutic clowning

Holland, Melissa ; Fiorito, Maria-Elena ; Gravel, Maï-Li ; McLeod, Sarah ; Polson, Jenna ; Incio Serra, Natalia ; Blain-Moraes, Stefanie
Arts & Health : An International Journal for Research, Policy and Practice, march 2022

Therapeutic clowns use embodied practices to engage with clients, their families and healthcare staff to empower patients and create therapeutic relationships. This study explored the effectiveness of a virtual therapeutic clown initiative.

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